%20%E2%80%93%20PIGSR%20is%20an%20instrument%20for%20genomic%20secondary%20results_files/PIGSR-Icon-Lamp-and-Word-Icon-Size-300x109.png){kind=icon}
The Preferences Instrument for Genomic Secondary Results (PIGSR) is a brief, validated tool to allow adults undergoing genomic testing to record their preferences about getting incidental or secondary results.
PIGSR is available for download under a Creative Commons Attribution-ShareAlike 4.0 International license.
%20%E2%80%93%20PIGSR%20is%20an%20instrument%20for%20genomic%20secondary%20results_files/Kyle-Headshot-300x300.png "Kyle Headshot")
Kyle Brothers, MD, PhD serves as Chief Scientific Officer for Norton Children's Research Institute in Louisville, Kentucky. He is a Professor of Pediatrics and the Endowed Chair for Pediatric Clinical and Translational Research at the University of Louisville, where he directs the Division of Pediatric Clinical and Translational Research. Dr. Brothers is a pediatrician and bioethicist who conducts research on ethical issues in the translation of genomic technologies to clinical practice. He is a practicing primary care pediatrician and serves as a clinical ethics consultant at Norton Children's Hospital in Louisville, Kentucky.Kyle Brothers, MD, PhD serves as Chief Scientific Officer for Norton Children's Research Institute in Louisville, Kentucky. He is a Professor of Pediatrics and the Endowed Chair for Pediatric Clinical and Translational Research at the University of Louisville, where he directs the Division of Pediatric Clinical and Translational Research. Dr. Brothers is a pediatrician and bioethicist who conducts research on ethical issues in the translation of genomic technologies to clinical practice. He is a practicing primary care pediatrician and serves as a clinical ethics consultant at Norton Children's Hospital in Louisville, Kentucky.
%20%E2%80%93%20PIGSR%20is%20an%20instrument%20for%20genomic%20secondary%20results_files/Ellen-Headshot-300x300.png "Ellen Headshot")
Ellen Wright Clayton, MD, JD, is Craig-Weaver Professor of Pediatrics, Professor of Law, and Professor of Health Policy in the Center for Biomedical Ethics and Society at Vanderbilt University and Medical Center. She has long been involved in working to ensure the optimal conduct of genetics research and its incorporation into clinical care and has been happily collaborating with Dr. Brothers for several years. She is a member of the National Academies of Science, Engineering, and Medicine and a Fellow of the American Academy for the Advancement of Science.
%20%E2%80%93%20PIGSR%20is%20an%20instrument%20for%20genomic%20secondary%20results_files/15-Stairwell-Pose-1-Cropped-300x300.png "15--Stairwell--Pose 1--Cropped")
Carla Rich, MA is a Research Coordinator in the Kosair Charities Pediatric Clinical Research Unit in the Department of Pediatrics at the University of Louisville. As a graduate student, Ms. Rich worked with Susan E. Kelly, PhD on a two year NIH funded study which explored rural Kentucky families’ experiences in accessing healthcare and services for their children diagnosed with a genetic condition. More recently, she has collaborated on federally funded studies sponsored by the Kent School of Social Work at the University of Louisville as well as state and community funded studies sponsored by the Survey Research Center at the University of Louisville. Ms. Rich is experienced with in-depth personal interviewing and survey research methodologies—both by phone and in-person. Ms. Rich completed her Masters degree in Sociology at the University of Louisville where she happily took the lead in creating projects to fund student research.
%20%E2%80%93%20PIGSR%20is%20an%20instrument%20for%20genomic%20secondary%20results_files/DNA-in-Pill-smaller-1-495x400.png)
%20%E2%80%93%20PIGSR%20is%20an%20instrument%20for%20genomic%20secondary%20results_files/Puzzle-Piece-Edited-495x400.png)
%20%E2%80%93%20PIGSR%20is%20an%20instrument%20for%20genomic%20secondary%20results_files/88x31.png)